Privacy Issues in Health Care

Useful Web Resources
Compiled by Ellen Wright Clayton, MD, JD
Professor of Law & Pediatrics
Vanderbilt University
and Past Chair, ABA Health Law Section's Clinical Ethical Issues Interest Group

(updated 3/13/03)

• William C. Lowarnce, Department of Health and Human Services, Privacy and Health Research, A Report of the Secretary of Health and Human Services (background paper for Secretary's Recommendations
  • http://aspe.os.dhhs.gov/datacncl
• Electronic Privacy Information Center (lots of great links)
  • http://www.epic.org
• Health Privacy Project at Georgetown Univerity
  • http://www.healthprivacy.org

Publications:

• Rothstein, ed., Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era (New Have: Yale, 1997)
• Privacy and Electronic Medical Data, 25 J.L. Med & Ethics (vols. 2&3) (1997) (series of articles)

Focused Program

June 9, 2006: Physician-Legal Issues Conference

• Guidance on Informed Consent for In Vitro Diagnostic Device Studies Using Leftover Human Specimens that are Not Individually Identifiable
• An Open Letter to Health Care Providers

• 2005 - 2006 Medical Research, Biotechnology, & Clinical Ethical Issues Group Action Plan 
• Selected Web Sites On Privacy Issues
• Selected Web Sites On Medical And Medical Ethics Web Sites